Help out during
Throughout May it is Hughes Syndrome Awareness Month. Organised by the Hughes Syndrome Foundation, the month aims to raise awareness and funds for sufferers of this condition.
Hughes Syndrome, also known as Antiphospholipid syndrome, causes blood clots in arteries and veins and can also cause recurring miscarriages in women.
Luckily, the condition can be easily tested for and treated to stop further clots.
Hughes Syndrome was only discovered in 1983, and the Foundation hold events throughout May – to educate and inform the public of this relatively new condition.
Throughout the month you can help the Foundation too. There are lots of ways to get involved. From collecting on your local high street to taking part in the Foundation’s recycling appeal – it’s easy to take part.
You can even create your own event. Why not try a sponsored walk or cycle? All the money raised goes towards funding research into the syndrome, as well as increasing the public’s knowledge of it.
If you would like to get involved you can find out more at the charity’s officialHughes Syndrome Awareness Month website. There’s loads of information and even a link to their regular podcast, so check it out today!
About Hughes/antiphospholipid syndrome
As Hughes/antiphospholipid syndrome was only first identified in 1983 it is a relatively new medical condition and, therefore, important research still has to be carried out until we can know much more about it.
This section of our website aims to provide answers to many of the questions people ask our charity when they are either seeking a diagnosis or have just been diagnosed.
Current treatment focuses on blood thinning (anticoagulation) therapy ,but there are other medications which may also help alleviate symptoms.
Hughes/antiphospholipid syndrome can present with many symptoms, some low grade and others more serious. If you are seeking a diagnosis, it is often very important to look at your family history of thrombosis or other autoimmune conditions.